Saturday, November 14, 2009

This makes me Laugh

Not much to add about this!

This is pure Bliss!



Some tidbits I didn't mention last post about his development:

he is sitting on his own all the time now. (with his back straight)

He is crawling - ( combat crawling - with some evidence of "real" crawling )

He pulls himself up and holds on to things ( mostly on his parents - but in his crib we find him standing there holding on to the railing and if we pull him to a stand he laughs and laughs )

When we hold him up he will walk a few steps toward us ( with prompting )

he's eating baby food twice a day ( he loves sweet potatoes, pears, apples, doesn't love peas but will eat them )

Sleeps through the night ( yesssss! )

Babbling all the time ( da da da da da, babababaaaaa, some others as well )

laughing a lot ( see video above ! )

Takes 3 naps every day.

take the bottle 4 times a day 7:30am, 11am, 3pm, 7pm ( or some variety of that )

loves to "talk" with us as we repeat what he does ( ie: he laughs - we laugh - he laughs - we laugh, etc.back and forth )

he still loves to play his piano and JUST got a new hand drum this morning which we have video of here



He is 16.3 pounds and about 27 inches
not sure where that is on the Ds height and weight chart because the Nutritionist only had the typical charts with her.
We need to plot them out ourselves but we are busy drumming and laughing which seem MUCH more important.

his PT gave us really good feedback this week and we are still in shock by it.
We are so excited that Max is doing so well right now. Since he was born with good muscle tone and is very strong he has a bit of an advantage with sitting, crawling, standing etc.

There is a LOT more to tell you about this - and about the regional center cuts and how that is effecting Max - and what we are having to jump through to get Max what he needs,,,but honestly - I prefer to just talk about laughing and drumming! MUCH more fun yes? Honestly it hasn't effected Max at all yet - just the amount of paperwork, hoops to jump through and phone calls to make for mama and papa.

Max visited the Speech therapist on Friday - Amy Johnson from Cornerstone. She is the BEST. No seriously. There is a year long wait list to see her. She's THAT good. She had a few tips and tricks and great feedback on how he is doing right now - No, Not with speech - but with his oral motor ability which will effect speech later.

he also saw his OT feeding therapist this past week and she thinks he is doing just great.

he does have some fluid in his right ear - left over from his first ( and only ) ear infection. We are monitoring that and he went to the ENT yesterday just to double check it and there isn't any sign of infection which is good - but fluid in the ear like this can cause hearing loss. Just what we need - TWO people in our house saying "WHAT?" all the time. Yes - I'm almost completely deaf in my left ear. It's not fun for others or myself and I hope that Max's ear clears up on it's own really soon.

We will keep you posted.

I'm getting ready to merge my art blog with this blog. I've been thinking about it for a while and I just feel that because I've started to make art again and sell it online - it will be easier for people to get to know me if they learn about Max as well since he is the inspiration. And some money from each sale is donated to Club 21 which is helping Max and others with Ds. Seems to feel more aligned with my life to have it all in one place. Keeping this blog, and getting rid of the other one.
Should take place this week.

Simplicity !

xo
c

3 comments:

Hector and Jennifer Varanini Sanchez said...

Cute, cute, cute! He is doing great! Enjoy it all!!!

christina said...

this is the best thing ive seen in a long time! made my day!! what a beautiful child.......and family! I need a fix!

xoxo

Kelly said...

Yay for Max! He's absolutely adoreable! Nothing sweeter than a baby's giggle! It looks like he's doing just wonderful! My Landon is also 9 months old and I am looking forward to his milestones too. Thanks for sharing and giving me hope!